GINTA – A story of heartbreak and hope – my time with Jessie Simpson

THE FIRST QUESTION I hear every time I walk into his room is ‘What are we going to do today?’. My answer is almost always the same, ‘we can read some, or do rhymes, but first I want you to tell me my name.’

He tries a couple of letters and eventually he guesses it right. We do a fist bump and then another. I tell him ‘you are amazing,’ and he smiles. You too, he says.

I first met Jessie last year on November 24^th. I did not know what to expect. I had been following the story since it happened, back in June of 2016.

I got in touch with his mom Sue after I wrote about him. When I offered to read to him, she said yes, that’d be great company for those long winter days, so we got started. ‘He will brighten your day, you’ll see,’ she said before I met him.

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Daniela Ginta is a mother, scientist, writer and blogger. She can be reached at daniela.ginta@gmail.com, or through her blog at http://www.danielaginta.com.